EB Awareness


Promoting EB Awareness

Epidermolysis Bullosa, or EB, is a very rare genetic connective tissue disorder that affects 1 child out of every 20,000 births (that means about 200 children a year are born with EB). EB is actually a group of disorders that share a prominent manifestation of extremely fragile skin that blisters and tears from friction or trauma. Internal organs and bodily systems can also be seriously affected by EB. The list of secondary complications can be long and may require multiple interventions from a range of medical specialists. As of today, there is no cure or treatment. Daily wound care, pain management and protective bandaging are the only options available.

➜ See more at: http://www.debra.org/whatiseb#sthash.qgzFRmY6.dpuf

Be part of history and celebrate National ‪#‎EpidermolysisBullosa‬ Awareness Week (October 25-31, 2014) in the virtual world, Second Life for the first time ever. Organized by Cerise Emor. Listen to special tribute concerts, purchase debra merchandise, meet new friends, and explore a New York City simulation. We hope to see you there!

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Hair:  [LoQ’ue] Tarasun (Got the fatpack from TDR Fusion for a song)

Skin: .WoW Skins:  Lexie Bronze 02 (Thrift Shop)

Dress, necklace, hat, and pumps: Diva Butterfly Dreams (EB Awareness Event – October 25-31, 2014, LM closer to the event)

Earrings: (Kunglers) TDRF #048 – Earrings – Silver ( TDR Fusion)

Pose: :Picture This! Poses: ~ Fall Fashion

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5 thoughts on “EB Awareness

  1. Pingback: EB Awareness (Post-98117) - [O.L.D.] Old London Docks - Best Second Life Fashion & Lifestyle Blog Feeds!

  2. From room number 27 (was moved due to misbehaviour), Sydney Mental Asylum for the Hopelessly, Incurably Insane

    Good on you for helping raise the awareness of this

    Like

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